Saturday, February 15, 2014

Steady

Not much action around here.  Raqu for the most part has been exceptional.
There are the occasional sleepless nights for one reason or another.  It seems we are well past the effectivity of her itch meds.  She wakes wildly crying that something hurts, but after a few moments and asking her what's up she admits that her foot is itchy.

No real problems anywhere else other then her attitude. 
She's a handful to say the least.  She knows what she wants and is starting to figure out the levels of manipulation required for getting her way.

Some nurses have great difficulty making any ground with her when she has her mind set.

We are fast approaching Bella's Ball up on Grouse Mountain.  Hopefully it goes without hitch.
West Jet and Hilton have teamed up for an impressive silent auction item.
Flight anywhere they fly and 10000 Hilton points.
That will be an impressive trip for the winning bid.

If anyone in the lowermainland wishes to volunteer email the contact link and we'll see what we can do.
Go to the Debra Canada website to donate.

Here's some of the good and bad of Raquel of late.

Probably from when we were jumping on couch

After bath, getting ready to put the bandages back on
Raquel learning how to tell time
Ice cream - let mommy alone

1 comment:

  1. My heart always misses a beat when I see those beautiful hands with blisters. I well know that Raquel's hands are unusually scar-free in comparison with other children, and adults, with her particular type of EB. So, somehow, finger-blisters are always the toughest for me to see. Not to say that any blisters are easy to see...but somehow those precious little hands seem to me to be a particular barometer of Raquel's health (rightly or wrongly). I know you will take care of them...as you always do...and save them for her. But that big blister really hits me right in the heart. She is so lucky to have you and Ren. And, of course, vice-versa. Thanks for the update Ryan. I check in a few times a week. I know that no news is your way of communicating just that...no news. But it is always nice to read updates.

    Kathy Young

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