Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB.
Sunday, April 14, 2013
Coco made this.
It's her Debra - EB awareness booklet.
She's clearly headed for a publishing career.