Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB.
Thursday, December 27, 2012
Never leave glasses unattended.
We were cleaning table after a dinner and we hear clunking and a solo dialogue only to find this.