Tuesday, July 3, 2012

MID DAY CHECK IN

On my way around town for work today I went by the home to check in on Raquel and her nurse.
As I walked in the door, Raquel laying on the couch appearing asleep swaddled in blankets facing the far wall she instantly cries out.
No Daddy
No Daddy
No Daddy.
No Bath.
No Bath.
No Daddy

hmmm
Instead of grabbing lunch I took some chips and salsa and left her from the fear of more pain on top of what she's feeling now.

FK EB!!!

It'll be interesting later this week as we will have a new nurse to break in to the darkness of writhing pain, torture of dressing changes and the deep anxiety of having to trust someone new to your very fragile child.

FK EB!!!

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