Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB.
Thursday, April 19, 2012
To prove she's in good spirits
This is the two sisters going at it moments after the above post and 24hrs past the photo of blister at foot.