Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB.
Saturday, April 21, 2012
The foot is starting to look good.
Maybe not, at least one of her toes looks good.
When she wakes like this and it takes two hours to open her eyes you know you're gonna have a day like the night before.