Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB.
Wednesday, February 8, 2012
This is for our Czech family
Gabi is going to have to get some skiing in as Cordelia is going to tear her apart.