Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB.
Monday, February 20, 2012
Raquel made page 2 of the North Shore News
This is the article link. At the bottom of article are photos of Ren and Raqu as well as Moe.
It reminds me a little like Lisbeth Salander and her Dragon Tattoos or a snake molting in the jungle. The connotation that this might be a step in her growth is fairly miss leading, but if I'd have titled it, it would have been ridden with the appropriate gore. Vampire soup, Blood and mayhem, Friction and trauma, A scream in the night.
Or a kitschy take on ready made headlines Happy, no lucky, The wrong genes or Mutations are us.
Maybe not what a Sunday paper is all about.
In any case, it's a good article with lots of leg work done by Erin.
I only wish that my brain wasn't as jumbled as some of the quotes she took from me. I thought I was making my self clear, but I guess like in a good bathroom mirror you can make yourself look better than reality. Once and a while walking down the street a reflection in a shop window leaves one feeling like the broad side of a bus, wondering which is more accurate.