Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB.
Monday, August 15, 2011
Vancouver is an amazing place to live.
When not fighting EB or other things this is one of the better ways to enjoy where we live.
Helps knowing someone with a boat and being able to learn on the job so to speak.
We were leading at this part of the race.
Nearly halfway through.
So best to take a picture and pretend we smoked them all.