Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB.
Wednesday, August 3, 2011
Not exactly a play Raquel will be able to take part in.
Every few minutes someone got hurt.
A few bruises. They were relentless. It started off as a simple game of rugby/soccer and ended up in a game of get Ryan. There was two more, but were off out of frame nursing injuries.