Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB.
Monday, July 25, 2011
Raquel pulling apart Cordelia's Butterflywings
'That's for the two blisters you gave me around my chest' she says, 'even if they were loving hugs'.