Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB.
Tuesday, May 10, 2011
Some Blister Areas Healing well under silks (No bandage required).
Week old, had some reoccurring blisters. Mostly to do with lifting her and forgetting about the wound below.
Two week elbow
I think Raquel will have to live through many indignant times such as having dandelion seeds blown all over her head.