Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB.
Thursday, May 19, 2011
I've got Blisters on my Fingers!!!
Large Variety Blister
post popping and clipping with new scissors
Probably from last nights Thrash
Just hours before we stick her in a car seat for 5 hours.