Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB.
Wednesday, February 23, 2011
Raquel did her first day of Montessori
Renata was very happy with the little things she could do and her focus.
Again, normal kid with some issues with her skin.
Dressing change day.
She only has a couple dots here and there.
Should be good.
Well, not including the horror flick that is her mouth.