Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB.
Tuesday, December 21, 2010
Dressing change was great.
Renata talked about how wonderful she was today.
No new blisters.
Everything is healing well.
We are effectively at the top of the roller-coaster.