Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB.
Saturday, December 18, 2010
Pictures From a Change
It was a great change.
Raquel was in such good spirits that we decided to not give her her typical dose.